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ALS Association

The ALS Association helps patients and families cope with the day to day challenges of living with ALS by providing information, resources, and referrals.

Services: Advocacy, Chronic Disease Self Management Programs, Specialized Information and Referral

St. Louis Regional Chapter

Saint Louis, MO 63146

(314) 876-7008

American Diabetes Association

The National Diabetes Association provides information on a variety of diabetes topics, as well as offering specialized referral services for those with the condition.

Services: Chronic Disease Self Management Programs, Disease/Disability Information

2451 Crystal Drive

Suite 900

Arlington, VA 22202

(800) 342-2383

Blood Cancer United/The Leukemia & Lymphoma Society (LLS)

Blood Cancer United is a national nonprofit organization dedicated to supporting individuals and families affected by blood cancers, including leukemia, lymphoma, Hodgkin lymphoma, and multiple myeloma.

Services: Chronic Disease Self Management Programs, Medical Expense Assistance, Prescription Expense Assistance, Specialized Information and Referral, Support Groups

3 International Drive

Suite 200

Port Chester, NY 10573

(800) 955-4572

Crohn's and Colitis Foundation

The Crohn's & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis, as well as educating, supporting, and empowering patients and their caregivers through patient-centric education and advocacy programs.

Services: Chronic Disease Self Management Programs, Specialized Information and Referral

733 Third Ave

Suite 510

New York, NY 10017

(800) 932-2423

Cystic Fibrosis Foundation COMPASS

CF Foundation Compass is a service that helps people with cystic fibrosis and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.

Services: Chronic Disease Self Management Programs, Specialized Information and Referral

4550 Montgomery Ave

Suite 1100 N

Bethesda, MD 20814

(844) 266-7277

Huntington's Disease Society of America

The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.

Services: Carrier/Predictive Genetic Testing, Chronic Disease Self Management Programs, Crisis Intervention Hotlines/Helplines, Disease/Disability Information, Fundraising Event Volunteer Opportunities, Fundraising Volunteer Opportunities, Specialized Information and Referral

505 Eighth Avenue / Suite 902

National Office

New York, NY 10018

(800) 345-4372 x240

Muscular Dystrophy Association

The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for information on muscular dystrophy and related conditions, resources, activities and more.

Services: Chronic Disease Self Management Programs, Health Education, Support Groups

1016 W Jackson Blvd #1073

Chicago, IL 60607

(833) 275-6321

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